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Aging Healthy with CF: Insights from the CF Senior Saturday Meet & Greet

September 2023 Event Recap


At the CF Senior Saturday Meet and Greet, our community collaborates to engage in peer-led discussions aligned with different awareness month themes. In September, our focus was on "Aging Healthy." This gathering brought together individuals aged 40 and above living with cystic fibrosis (CF), and their collective wisdom provided valuable insights into the challenges and strategies for maintaining a healthy lifestyle while aging with CF.


A Proactive Approach to Aging with CF

One of the central themes that emerged from our conversation was the importance of taking a proactive approach to aging with CF. It's a journey that demands a commitment to self-care practices. This includes regular exercise, prioritizing restful sleep, and maintaining proper nutrition. These practices are especially critical for those with cystic fibrosis-related diabetes (CFRD).


Unique Challenges and the Role of Certified CF Centers

Throughout our meeting, we addressed various pressing concerns. Notably, we discussed the distinctive challenges faced by individuals who are aging with CF. These challenges are unique to this particular demographic and underscore the significance of certified CF Centers. These centers play a pivotal role in our community, but they must also proactively adapt to cater to the growing aging CF population.


Balancing CF Care and Caregiving

Another emerging topic was the increasing number of individuals managing CF while caring for aging parents or spouses. This introduces complexity to their lives, and our discussion provided insights into navigating this intricate terrain.


Understanding Survivor's Guilt and Medication Success

Our meeting also touched on the complex emotional landscape surrounding survivor's guilt, acknowledging its presence and impact within our community. Additionally, we explored the intriguing question of whether the success of Trikafta, a medication for CF, might lead to a reduced reliance on other prescriptions. We also discussed strategies for addressing potential mental and emotional side effects that could accompany various medications.


Key Takeaways

As our September meeting drew to a close, several key insights emerged:

  • Ongoing Learning: Understanding CF and its intersection with age-related issues is a continuous learning process. Each day brings new knowledge and challenges, and staying informed is essential.

  • Resource Identification: Identifying available resources and forging a solid partnership with your healthcare team is fundamental to effectively manage CF as you age. Don't hesitate to seek guidance and support.

  • Self-Management Skills: Acquiring new self-management skills is imperative for maintaining a healthy and fulfilling life. Be open to learning and adapting your approach as you age.

  • Peer Connections: Embracing peer connections, as exemplified by CF Senior Saturday Meet & Greet events, provides invaluable support and encouragement on the journey to aging healthily with CF. You're not alone on this path; sharing experiences with others can make a significant difference.

In conclusion, the CF Senior Saturday Meet & Greet is a vital platform for the Aging with CF community to unite, exchange knowledge, and provide mutual support. The insights shared from our September discussion on "Aging Healthy" underscore the fact that while aging with CF comes with its set of challenges, adopting a proactive approach, having access to valuable resources, and leaning on the support of our fellow peers can empower us to lead fulfilling and healthy lives as we navigate this condition.

If you're seeking additional insights on aging while managing cystic fibrosis, check out this video by the DKBMed CF Education Resource Center titled "Five Tips for Successful Aging with Cystic Fibrosis: A Patient's Perspective.


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